Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, March 16, 2009
Terrible Two's? Moi?
English: A drink of water. Another book. Downstairs. Frogs. Guitar song. Not that song. The other song. Nooooooooooo! No-no, noooooooo!
translated from Bo:
A-gah! Agah! Boo. Dow!!!! Hop-hop. 'tar? (mommie singing) No. Nooooooooooooo!
I'm looking forward to the escalation of protests, vocabulary, volume and variety of stall tactics. Not. Let the games begin.
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