It is so true and maybe this is why it feels so cliche to write, but it is from those hours which are our darkest that our hearts allow us to fathom the furthest reaches of our own compassion, into an infinity of empathy. Each stone we gather for shelter from the winter cold, and each story we share to keep our fire of compassion burning is another step towards our most evolved selves.
Maybe that is the explanation for my obsession with lurking on the blogs of other sick babies. Or maybe its because each of these websites is a testament to the miraculousness of life. The infinite strength and hope we parents find each day; surprising, I suppose to no one but ourselves.
To quote a recently penned letter to my chosen family,
"Life is miraculous. Full of miracles, great and subtle... We are too lucky sometimes to know it. Maybe that is the blessing of our riches, those moments of luxurious, unselfconscious living."
I'm not always clear, myself, what the driver is for this blog. I mean, besides Bo. Is it a place for me to vent? A place where my scattered given and chosen family can see Bo's progress? An unabashed parade of gratuitously cute snapshots? Is it a place for me to posture, putting forward our Strongest and Most Presentable Selves? Maybe to convince myself of Bo's ability to kick the statistics? It is a testament to my Faithfulness in the Universe and its goodness. God is good. All the time. All the time. God is good.
The one gift from one of the few hopeful hearts among our doctors at UMich said, "There is always room for magical thinking." Amen.
Maybe that is the explanation for my obsession with lurking on the blogs of other sick babies. Or maybe its because each of these websites is a testament to the miraculousness of life. The infinite strength and hope we parents find each day; surprising, I suppose to no one but ourselves.
To quote a recently penned letter to my chosen family,
"Life is miraculous. Full of miracles, great and subtle... We are too lucky sometimes to know it. Maybe that is the blessing of our riches, those moments of luxurious, unselfconscious living."
I'm not always clear, myself, what the driver is for this blog. I mean, besides Bo. Is it a place for me to vent? A place where my scattered given and chosen family can see Bo's progress? An unabashed parade of gratuitously cute snapshots? Is it a place for me to posture, putting forward our Strongest and Most Presentable Selves? Maybe to convince myself of Bo's ability to kick the statistics? It is a testament to my Faithfulness in the Universe and its goodness. God is good. All the time. All the time. God is good.
The one gift from one of the few hopeful hearts among our doctors at UMich said, "There is always room for magical thinking." Amen.
