Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
This is Bo and his next older cousin, Violet. She came over to play a few weeks ago.
Bo has his next well-baby (get vaccinated) appointment today. I hope I can find his vaccine card. It's always sliding around some pile of documents or other.
