Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, October 2, 2009
Ready to Celebrate
My self-imposed travel restriction ends next week. I just feel so relieved and joyful. Still a few things to wrap up before the finish. But so close. Bo will be out of his cast in 3 more weeks and we will celebrate that, too.
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