Feast your eyes on these. I hope this makes up for my temporary absence from the www. A short blip of insanity. Like I was saying tonight, Bo was planned, losing my mind was not.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, August 6, 2008
Crazymaking Teeth
Couldn't post pix last night; buggy blogger. Sigh. So a quick update. Bo is teething again. This time it's 3-4 on the top that are coming in. His gums are rock hard and you can see the buds trying to push through. He's drooling like crazy and I think even producing lots of snot because of this. But normal baby things don't seem to affect Bo normally. He's been vomiting a lot from all the drool and mucous. So much so that we had a nice visit to the ER (labs all turned out normal), a follow-up with his pediatrician, and another set of labs drawn (no data on that yet). I've never been happier to walk out of the ER "for no reason."
Subscribe to:
Posts (Atom)