Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
The cheeks are gaining on the nose. It's a close race.
And, quick weaning/nursing update; that was a false alarm. He's still nursing 2-3x/day. And I'll keep pumping probably until his next birthday so we have milk in bottles in case he really does wean before then.