Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Saturday, March 21, 2009
Family Time!
We just had an amazing visit with Uncle Bruce and Gramma Maggie. This pic is also from the Chicago visit at the end of January. Here, Bo is working on Uncle Brian's mac. We love family time. Tio Ren and Auntie Jennie are meeting us in A2 tonight and coming back home with us on Tuesday.
Hopefully we get to trade the loaner back in for our wagon on Friday. That's not to say that I haven't enjoyed cruising around in a red 1992 Taurus full of stale smoke and a "Please do not smoke in this car" admonision penned onto yellowing masking tape sign.
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