Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, June 3, 2009
Happy 2nd Birthday!
I am too paranoid and superstitious at this point in Bo's life to make a big deal about his birthday, until it's over. It was a relief to me that his baptism was a month after his birthday last year, so we could celebrate it then. This year, too, I expect to have his second birthday sometime in July. Pictures from his birthday party last year, and only one month old.
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