Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, October 29, 2009
Breaking Radio Silence
We wanted to surprise my sister at her wedding, because she was essentially trying to elope, but wanted my parents there. So to preserve the surprise, I couldn't bring myself to update in the fear of spoiling the surprise. We successfully surprised the bride and groom, and got Bo to Hawaii and back in one piece! The only downside was that I ended up getting h1n1, but thankfully it was mild for most of the time I was ill. Still recovering in Michigan, but delighted that we had such a successful long distance trip. Bo's cast came off less than 24 hours before our departing flight. What a crazy month.
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