Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Saturday, April 11, 2009
2 hour countdown
Easter Vigil starts at 8:30pm, but I have to be there early. So in 2 hours, I'll be at the church ready to get dunked. The consolation is that Fr Ken has to get into the font, too. Another bonus, I get to wear a scratchy nylon robe (like a choirboy's), so don't have to dress up!
Here is Annika, Dyann, Bo and Yours Truly.
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