Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, December 17, 2008
Desperately Seeking Po-Po
Bo had his first visit with his alternative medicine doc, and his first teacher and OT visits today. The reports were all glowing, and that everyone fell in love with him. And even though he had a rotten night last night, he was a prince among babies all day. At the end of the day, he was missing his Po-Po and kept walking into the guest room calling out for her. I had to keep telling him that we would see her, "tomorrow, tomorrow, I promise!"
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