Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, August 20, 2010
Janky Line
Since Bo's last admission to fix his line 2 weeks ago, his line stopped three times. Twice in the early hours Tuesday morning 10 days ago. And once today. The first 2 times, Jose was able to get it going again. Not today. He and the nurse took Bo to the surgeon's office. Please send prayers that they can fix this without admitting him to hospital.
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