Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Saturday, August 22, 2009
Comfy!
Bo loves his new big boy bed. It is so comfy, he just passes out as soon as you get him in it. But the transition isn't quite complete, as he has been waking up once each night, and in light of the kidney situation, I haven't had the heart to insist on self-soothing. So there's usually a parent squeezed in with him upon waking each morning. I have not regretting springing on a super-good mattress at all these last 2 weeks. I wake up refreshed, even with a 2-year old draped across my head.
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