Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
You heard it right. Fractured both bones below the knee. Cast from above the knee to toe. Hopefully get into the ortho's Monday and have a plan from there.
Wrastling with Tio from our trip to Chicago in July.
