Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, November 20, 2009
The 2nd of 2 Casts
The second of 2 casts was blue. It was removed less than 24 hours before our trip to Hawaii. Here at DeVos Children's Hospital, he is getting a pamidronate infusion, watching Thomas the Tank Engine DVDs (thank you Child Life!) and mugging for the camera in his Pensacola Beach Tee (thank you, Grandpa Bruce!)
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