Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
He took his first independent steps this weekend at my parents' house. My whole family was there to see it. How cool is that? Bo, our miracle baby, strikes again! An early Thanksgiving to remember. He loves family weekends!
