Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, January 25, 2008
All Text Update
Apologies to all Bo fans everywhere, but I haven't had a chance to upload new pix, so you just get text today. All the drs visits went well and without incident, thank goodness. Bo was showing off for Dr. Page (pediatrician), and sitting up like a big boy. Then with Dr. Cloney (GI) he was talking and talking with his new favorite words, "dadadadada, brrrrrrrrr (big saliva-y raspberry), dadadananana, yeeeeeeeee!" Since we got approved for 180 hrs of respite care through the end of August, we are going on our first nurse-supported date tonight! Thank you, State of Michigan, Department of Community Health!
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