Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, May 8, 2009
Biopatch, Here We Come
We followed Boston's 2007 dressing change protocol exclusively until now. Up to this point, Bo had never had a site infection and only one line infection. The last 2 months he's had 2 site infections back to back. So for today's dressing change, we will try the J&J Biopatch. It's a foam disc @ the size of a dime impregnated with chlorhexidine. Hopefully, Bo is no longer sensitive (I know, I'm hoping) to this chemical. It's a microbicide that should kill the bacteria that dare come near the site.
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