The potty experiment started in January, earlier than some think efficient, but we're not shooting for efficient. While I understand that if you're timing and the child's personality are right, and you sacrifice a 32 day old goat at the new moon with the foot of a female chicken tied around its neck, the kid will eschew diapers for potty overnight, I'm not really interested in those odds. And I'm not interested in depleting the earth's mines of zinc in the next 6 months. We're talking about approximation, people. So, I'd say he's at about 70-80% good with the potty action, and that makes the diaper rash challenge more of an annoyance than a serious medical hazard (it was, believe you me).
Wt: 27lbs and a few ounces; ~50% adjusted for age
Ht: 78cm; less than 5%, even adjusted for age
Head circumference: 52cm; over 95% adjusted for age
Nephrology, gastroenterology and feeding clinic were all delighted with his progress and concur that this is the best they have ever seen him. We are not going to rock the boat on anything, so he stays 1800cc/20hrs of TPN daily. While fewer hours are more convenient, I'd rather stay out of the hospital than risk dehydration.
We plan on checking trace elements, B12 (and MMA and homocysteine) in the near future. GI doc will ask endocrinologists when we need to start worrying about early onset osteoperosis. And if you didn't notice my tweet: FOUR separate posters are being presented at this summer's ESPGHAN in Budapest on Microvillus Inclusion Disease! And one of these posters will be presented in Chicago's Digestive Disorders Week in the beginning of June!
Miracles! God's love is amazing. The Universe is listening attentively.
