Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, August 28, 2009
Deliciousness
The first thing I hear is, "ah la so mah!" as a small soft hand reaches over to turn my face to his. "I love you so much, too, Bo." What a way to start the day. Even with the rain. It doesn't seem so gloomy as luscious and delicious. I start my day in the green haze of bursting leaves and grass and rain, covered in the sweetness of my darling family. I can't wait to see the rest of the family in the afternoon, bursting with succulence.
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