Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, September 3, 2012
detour
Vancomycin levels were lower than the surgeon wanted, so the pharmacy will compound new doses and deliver tonight. Instead of the 1st day of kindergarten, Bo will get to go to the hospital for a blood draw. The laboratory studies from this will: ascertain that the new level of antibiotics are strong enough to kill the bacteria (and not Bo), that the other components of his blood are stable, and that there are no longer pathogens living in his circulatory system. I guess that is a little more important than standing in line for the bell to go inside.
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