Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, December 11, 2009
Say Cheese!
I like watching this one, especially as I brace myself for what Dr. Doom predicted as "it" getting worse before getting better. "It" being Bo's level of discomfort. And the solace comes from the thought that he's gotten rid of all his kidney stones and is on the medication to prevent new ones from forming.
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