Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
We couldn't resist and got 3d/4d ultrasound pictures and movies. I'm considering YouTubing the avi files, but am also a little squicked out by that prospect. Here are some shots of our very own Sparkle/Sprinkle Primavera in utero.
