Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Tuesday, September 22, 2009
Looking Through the Hole in my Heart
I told my friend who is going through the rough patch that I had a hole blown into my heart a few years ago. And just when I think it's healing a surprising reality snags it back open and just that little bit more. The world through this window is full of magic, miracles and angels. I want him to look through the hole in his heart and see the all the angels with holes in their hearts surrounding us, too. Magic doesn't just fly into your heart. Windows into other worlds don't just open to your eyes. The magic winds that brought our friend back to us blew a hole in his heart, too. It is the only thing I am ever greedy for anymore.
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