Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Sunday, February 1, 2009
The Fastest Speed Walker in Town
In the space of 2 months we went from sitting and creeping/cruising around furniture to a non-stop blur of constant motion. I've considered shifting my bedtime to coincide with Bo's. He's wearing us out, but in a good way, this time. And he had so much fun visiting with his Tio, Aunty Jennie, and Godfather! Despite the cold, we all had a great time. We even caught the very beginning of the New Year's Parade in Chinatown.
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