Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, March 4, 2010
7-10 days
Well, Bo seems to slowly be recovering from his cold, and Jose seems to be getting worse. Hopefully we all come out alive at the end of the weekend. I'm already exhausted. Those pre-natal vitamins have kept me healthy all winter (knock on wood).
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