We knew that Bo's IV feedings could lead to liver injury, we just weren't expecting it to happen so soon. We had been home a little more than a month, when his liver started to get hurt. You can see the jaundice in his skin and the whites of his eyes. Our visiting nurse said that she had some kids whose livers were so injured that they cried yellow tears. Thankfully Bo's liver has not been that badly injured. These pix were from mid-August (I'm trying to catch us up to present day, and I don't have that many pix from August with me).
Because of this, we accelerated our temporary move to Boston, where we were hoping to get an alternate lipid (sourced from fish instead of plants). The theory (contrary to popular belief) is that it is the plant-based lipids that cause the liver damage. But before we could see for ourselves, we had to duke it out with a) our insurance, b) Bo's secondary insurance (Michigan Children's Special Healthcare), and c) Bo's GI specialist. There were phone calls, faxes, visits, clinic appointments, emails and more phone calls. Meanwhile, Bo's liver is slowly disintegrating, and he is turning a brighter shade of yellow and the whites of his eyes are turning dull and green (at the corners).
