Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, March 18, 2009
Can't wait to see Tio and Aunty!
These are from Bo's last visit to Chicago 7 weeks ago. Neither is staged. Just happened that way. He just happens to be mischievous.
These are from Bo's last visit to Chicago 7 weeks ago. Neither is staged. Just happened that way. He just happens to be mischievous.
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