We did go to Indiana (82 miles from here) to see the steam museum http://www.hesston.org/ on labor day. It was a hoot. Although I reinjured my ankle. Which made everyone mad. And tense. Because Bo was also not doing so great. Although he did enjoy the day.
At first I thought it was because we forgot his second dose of Previcid 2 days in a row. Then I thought maybe he had a site infection brewing. There have been a rash of them in the kids with central lines community, and his site was a little red, on top of his scratching at it. Or because of it? Then we thought maybe he was passing kidney stones? Well, either way, he started throwing up Sunday night (5x), and got worse Monday (every hour! Jose is a champ). Tuesday less but still too much for us to be happy (5x). Wednesday, he had thrown up 3x before lunch. I was on the horn with GI and nephrology. And we went up to GR for an ultrasound, additional blood serum testing (aluminum, uric acid, and I suspect calcium in a few different forms). His nurse dropped of some pee to the local hospital to run a urine study.
At this point, the most reasonable assumption is that it's kidney related. Either the allopuranol is working and the stone is moving around and hopefully getting smaller. Or it's not working and it's getting bigger. From the imaging perspective, they did not see any additional stones from August, nor growth from that big one in the left kidney. From the blood study, the uric acid level has decreased. We are still waiting to hear the results of the urine study, but 2 out of 3 leads us to believe that... wait for it... the orally administered allopuranol is working!! Even if its efficacy isn't as high as a typical kid, it sure beats new stones forming. Okay, so we wait for the urine studies to come back and go in to see the docs in a couple weeks.
Last night he only got up once. So I'm hoping we're on the tail end of this disturbance, and that the allopuranol can do its thing without additional pain. And to reward those of you waiting patiently for pix and updates, here are some vimeos. And I am still under the gun. So unless something significant changes, you may see new images, but not much else for at least a few weeks.
