So Dr. Doom wanted to see Bo as soon as we told him what was going on Tuesday night. Sorry to keep you all hanging. And we went up for a morning of hospital stuff Wednesday: UltraSound, X-ray and clinic with said Dr. Doom. Although he seems happiest issuing statements of Doom, Jose and I agree that he is probably the best dr Bo has, besides Dr. Puder and Gura (Omegaven team from Boston). Doom runs the pediatric nephrology, dialysis and transplant centers at DeVos, so he's used to complicated kids whose kidneys are part of a multi-system event.
Unfortunately, this doesn't change the fact that I always leave this clinic tearful and stressed out.
So Bo has a stone in his left kidney that had shrunk from winter through spring, but has since grown again. The plan is to attack it with an oral drug called allopuranol, despite his MID. Since we know the Versed, previcid, Tylenol and Motrin work orally, we're going to try this. And if it works (please, God!), then we can start addressing the calcium issues (always a risk for TPN-dependent kids).
They've increased the volume in his bag, and I'm not even going to ask if its temporary, or ask again about weaning hours. I realize now, that if he's stable at 20 hours, and he's a 20 hour guy, that's certainly better than being in pain and retching and not sleeping and the general misery that all represents.
So, that's life.
