There's Just Do It, and Why Do It. Blogging seems so 2001. A pet-rock type phenomena. But I am stalwart in this project. I am dedicated to the off-chance that someone searching the huge junkpile of the internet looking for hope after an infant's diagnosis of microvillous inclusion disease will stumble upon us.
While it might seem that we are more or less a regular family, it cannot be overstated that Bo's existence is an outlier, a miracle if you will. He wasn't supposed to live past 1. He is now 3 and in preschool. The magic here is that this good health IS reproducible. Just add Omegaven, and voila.
Maybe that's why I have such a hard time documenting Ahn's infancy. It is so different from Bo's. When Bo was 3 months old, we were in Boston, trying to get Omegaven, fighting for his life, staring down the barrel of a rising-biliruben (~9)/liver failure gun.
This week we celebrate: my mother's birthday, our 10th anniversary, Ahn's baptism, her 100 day birthday and my sister's birthday.
Happy September!
