Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Sunday, March 2, 2008
Happy 9 Month Birthday!
We are officially out of the literature. Since there aren't that many recorded cases of MID, we're already working with a limited knowledge-base. But of those recorded cases, most of those stories tragically end by nine months. As of today, we have even less literature to reference for Bo. I won't say that we beat the odds, but that there are no numbers available to even calculate them now.
I went out and bought both size 3 and 4 overnight diapers, giddy with optimism.
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