And... still napping 1x/day. Usually down btwn 12:30 and 1:30pm; waking up btwn 3 and 4pm! The extra long naps are certainly due to all the abx, but I'm hoping they won't disappear all together as he starts feeling better.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
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1 comment:
So handsome!!!!!!!!
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