Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, January 14, 2010
All Quiet
So, I'm having a mental block and just can't get pictures up. I figured a shout out to the world that all is quiet and well would be good just about now. Bo is sleeping peacefully. We've been approved for another 3 months of nursing care. Jose's got a sculpture entered in CCS' alumni show. And all the pre-natal testing has come back so far as normal. I'm at 17 weeks (but as big as 25!!) and am past the morning sickness and terrible fatigue. Now I'm just hampered by my size.
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