Nobody knows. I'm working 25hrs/week as of 12/17/07. This ramps up to 32hrs/wk starting2/2 and back to full time 3/10. So far, Bo doesn't seem to miss me too much. I get to hang out with him in the morning before going to work, as he is a naturally early riser. Then, around the time I come home, he's either just getting up from his first nap or just about ready for the second one. His mood tends to get more rowdy as the day wears on and as he resists his later naps. Yesterday we kept him awake through what would have been 3rd nap, since that was such a disaster the day before (no nap occurred, just resistence to it). Today, he went down for 3rd nap rather late in the day, and I'm just waiting to see if he will sleep through the night and wake up really early, or decide to wake up during what is the middle of the night for him (after 8:30pm).
Mondays, his visiting nurse comes to draw blood for labs, and take his weight. Monthly she will draw extra blood for the Omegaven study run out of Boston Childrens, and measure his length. Today, he was weighed and measured: 26" (25%! hooray) and 14lbs 6oz (only 2%, but that's an improvement from not even being on the growth curve). His bilirubin was 0.1 again, for the 5th or 6th week. It's been so low for so long, I can't remember. Isn't that great?
Next Monday the county OT/PT people will come to give Bo an assessment and determine what additional services he will get, if he needs any at all.
Our Michigan Children Special Health Care (secondary insurance from the state) respite care request is being reviewed in Lansing (which we really, really need, especially once I have to start travelling for work again). And, hopefully, our request for Private-Duty Nursing will get submitted and reviewed soon, too. Our primary insurance policy already excludes both. They only approve private-duty nursing or respite if it's instead of the patient being in the hospital (meaning they stand to save a substantial amount of money).
