Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, November 24, 2008
Hats Off!
Gearing up for the winter. We just had our first real snow. Wednesday we'll brave the roads and head to A2 for Thanksgiving Part 2!
Thursday, November 20, 2008
Wednesday, November 19, 2008
Batman Takes Grand Rapids
Friday, November 14, 2008
Swingin'
Thursday, November 13, 2008
Catching Up Slowly
Wednesday, November 12, 2008
Big Headed Muppet Monster
Tuesday, November 11, 2008
Friday, November 7, 2008
The 80's Are Back
Thursday, November 6, 2008
Wednesday, November 5, 2008
Too Many Teeth!
Subscribe to:
Posts (Atom)