Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, November 13, 2008
Catching Up Slowly
Cold chillin' in DTW on September 21st, waiting for our connection home.
So far so good. We will be in A2 for a long weekend and to celebrate my dad's 70's and an early Thanksgiving with the Chans!
Cold chillin' in DTW on September 21st, waiting for our connection home.
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