Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, November 20, 2008
Must Get Walkies!
Rockin' the hat-hoodie combo. Both gifts from beloved aunties. As well as the retro wooden wagon. Lovin up the aunties. Mmmmm.
1 comment:
oh my goodness those cheeks are stamping their glory into my heart. LOVE YOU!!!!!!!!!
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