Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, November 7, 2008
The 80's Are Back
Mesh asymmetrical vest, no pants.
DeVos Children's Hospital from early September. Seems like a million years ago. We hope to keep it that way.
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