Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, March 25, 2009
Mmm... Sleep...
Bo was good enough to sleep all the way to my parents' and most of the way back. How he slept while we were there for a long weekend is a whole 'nother story. Let's just say sleep disruption did nothing for my disposition.
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