Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, March 26, 2009
BFF: Nurse Colleen
Our not so secret weapon to keep Bo healthy: Nurse Colleen!
1 comment:
look at that fuzzy head!!!! oooh I just want to scruffle it
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