Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, November 24, 2008
Hats Off!
Gearing up for the winter. We just had our first real snow. Wednesday we'll brave the roads and head to A2 for Thanksgiving Part 2!
1 comment:
excellent use of envelopes!
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