Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, November 12, 2008
Big Headed Muppet Monster
Bo's head looks bigger than Jose's. Currently this is only an optical illusion. I won't be surprised if it shortly becomes reality.
1 comment:
eeeek....utterly...melting....away....
at this cuteness.
love you guys!!!!
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