Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
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1 comment:
holy hell fire... dude... just catching up. hope hope hope your home now. kisses all around.
oh and that gramma who thought he was super young - what B.S. as soon as your kids are a little older all babies look like they are 6 months. seriously. I look at anyone under 2 and am baffled at their age. ugh. sorry I just got all protective that she made you upset.
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