Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, April 19, 2012
Haircuts!
Everyone (except me) got their haircut yesterday at Suzanne's new fabulous space downtown. Bo sat so still and quietly, even though I could tell he was nervous. He flinched each time she sprayed water on his hair. Still, what an improvement on the screaming he used to do. I think it helps that Ahn went first and she did not cry at all. She did get bored, though. Somehow, I ended up with more hair stuck to my clothes than anyone?
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