Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, May 18, 2011
pics
ok, so the sd card with all the Easter pics was corrupted and they were pressed onto a CD (nice save, Jose!), but now I'm having issues with that! Anyway, these are more recent, and you can see how much Baby Ahn adores her Bababababaabab-Bo!
Hi Bo! My name is Jenna and I came across your site. u are an amazing, strong, courageous, and determined, Fighter, Precious, and Special Gift. U are a Brave Warrior, Smilen Champ, an Inspirational Hero and an Earthly angel. I love it when others go by my site and sign my guestbook. I love meeting new friends. www.miraclechamp.webs.com
5 comments:
awww! they are both getting SO big.
awwwwwk!!! swooooooon. love you!
Hi Bo!
My name is Jenna and I came across your site. u are an amazing, strong, courageous, and determined, Fighter, Precious, and Special Gift.
U are a Brave Warrior, Smilen Champ, an Inspirational Hero and an Earthly angel.
I love it when others go by my site and sign my guestbook. I love meeting new friends.
www.miraclechamp.webs.com
she has hedgehog hair! I LOVE IT!!!! I want to reach in and scruffle her. xoxo. and the hugging sibs is super cute.
just had to come back and take another look at these sweetums. xoxo!
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