he plays hospital with construction vehicles as patients.
he wants to be a crab for halloween so he can pinch people.
he wants ahn to be a sea creature. shark comes most naturally to her.
I imagined Bo grown up for the first time in my life. I could almost feel my cheek against his tux on his wedding day. I never even allowed myself to dream of that until today.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, May 27, 2011
Wednesday, May 18, 2011
pics
ok, so the sd card with all the Easter pics was corrupted and they were pressed onto a CD (nice save, Jose!), but now I'm having issues with that! Anyway, these are more recent, and you can see how much Baby Ahn adores her Bababababaabab-Bo!
Subscribe to:
Posts (Atom)