Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Tuesday, December 28, 2010
Babies, Sleep and Restive Drooling
Somehow they just seem to get bigger and learn more complex things just long enough for me to note them, but hardly long enough for me to linger and savor. They just seem so much more goal oriented that I am, anymore.
1 comment:
awwwwk!!!!! so cute!!! muuuuahhh!!
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