Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, November 6, 2009
Heartbreak Hill
One of the beloved children I follow; suffering is coming to an end. Send them your energy, your prayers and your love. An unimaginably heartbreaking day. www.gavinowens.com
4 comments:
my thoughts and prayers are with little gavin, though i do not know him, my heart is breaking for his family. *heart*love*prayer*
oh, heartbreak... I pray for his family and for his rest.
my thoughts are with his family - and always with you guys. xoxo
hey... just wanted to say I love you guys
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