Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, October 2, 2009
Ready to Celebrate
My self-imposed travel restriction ends next week. I just feel so relieved and joyful. Still a few things to wrap up before the finish. But so close. Bo will be out of his cast in 3 more weeks and we will celebrate that, too.
2 comments:
thanks soooo much for the details and the updates of the last couple of posts! you are amazing. we love you!
kisses hugs and train whistles from my fam to yours
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